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Mr Sheep and the clowns

March 20, 2012

Hope and I are still in hospital . she is a little brighter today in that her heart rending shriek has eased but she is very listless and floppy and fed up and then suddenly alert, hungry then not then sick, then hot then cold and so on .. nothing concrete still waiting for test results to come back.

They are going to do the lumbar puncture again tomorrow – yesterday’s fluid was contaminated with blood cos she was wriggling so badly. They have to bend her literally in half to open out the vertebrae in her spine to get the needle inbetween the tiny bones and she didn’t like being bent. She has a yellow sticking plaster on her back now with little animals on it .. I find it hard to look at something so jolly knowing how much trauma she experienced getting it.

I’ve sung her all the songs I can think of, the lyrics go completely out of the window at this point … I could sing along to songs but ‘Love me tender’ had alot of tum ti tums in it and even ‘Truly Scrumptious’ went awol in the middle …

It’s hard work and lonely looking after a poorly baby. The staff on the ward are helpful and kind, the lovely lady that gave Hope a pink teddy bear and a little purple knitted hat (knitted by women in America and sent to Addenbrookes … are there not enough knitters in England??? note to self must learn again) came to see her this evening which was kind, and a frined called in at lunchtime and gave me a very welcome hug. Roy bought Mr Sheep, Hope’s favourite furry creature, in from her little pink Moses basket at home and he now sits in the cot by the pink teddy and a baby sheep (they’re black and white so she can see them and she just seems to like small furry sheep!!) .My poor mother with her broken wrist managed to walk round to the hospital as well and let me go and have a shower which was nice. I should be sleeping now but my mind is just all over the place and I’ve found that my laptop picks up the free wifi from the hospital concourse 100 yards away.

Anyway – she is having IV antibiotics ‘broad spectrum’ type which target everything and if she has had meningitis will have bashed it into submission.

The children’s ward has a garden with exciting games in but Hope wasn’t in the mood … because she’s being barrier nursed she can’t go in the children’s day room and we couldn’t leave the room when the hospital clowns came and performed just outside our room so we peered plaintively out through the glass.

Poor little Hope … not sure if she’s in a holiday camp or boot camp bless her. She’s lying now on her pink and white car fleecy blanket from America under an old blanket from home surrounded by her furry friends with a red light on her foot monitoring her pulse and blood oxygen level, and her huge canola all bandaged up like a cartoon bandage on her little arm .. but she’s peaceful and asleep and I best get to bed too. My little pull down bed beside her is fairly comfortable and I’m lucky to be able to be beside her.

Not looking forward to tomorrow and lumbar puncture try again but the consultants have both said it needs doing but I’ll interrogate them again in the morning if she seems better. Fingers crossed.

Night.

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12 Comments leave one →
  1. Simon Edwards permalink
    March 20, 2012 11:57 pm

    I really hope everything turns out ok and you both get through this ASAP. As a (relatively) new Dad I can only imagine how you must feel – but they are hardy little buggers and jam sure you have a fighter!!

  2. Joan Lawton and Neill Murray permalink
    March 21, 2012 12:39 am

    So pleased dear Hope is a little brighter, we have been sending positive thoughts all day,

    Re knitting of toys and things, it is very strange there must be an exchange going on and /or very poor communication , our lovely ladies group have been knitting Angel Bears like mad to send all over the UK and parts of the world to give comfort to children in crisis, I am sure they even send them to the USA, we also knit fish and chip dresses so that babies in Africa can have clothes to go home in instead of being wrapped in news paper [ hence fish and chips]

    I say we but I have to admit I can not knit but if you are going to learn I will as well

    Love, hugs and prayers from us both

  3. mary holleman permalink
    March 21, 2012 4:40 am

    Just returned from the other end of the spectrum…..taking a friend to dinner for her 92nd birthday….and read your post. Ellie, you and Hope are in the best place possible. Hope is surrounded by excellent medical providers and her favorite people, your mum, you and Ray, and of course her sheep. She is as comfortable as she can be away from home, and you, though mentally and physically exhausted by the ordeals of the past days would be even more so were you not by your breathtaking Hope. So, hold fast to good thoughts and the love and prayers engulfing you from around the globe. xo

  4. Cate permalink
    March 21, 2012 7:14 am

    Tell Hope she will be fine. Well and happy very soon.
    Also, ask her to please hug her mummy.

    My mum says you have one emergency trip to the hospital with each child. So your getting yours in early.
    Stay strong Ellie. Much love. Xx

  5. March 21, 2012 8:09 am

    ::hugs::

  6. Mike aka Spanish Johnny permalink
    March 21, 2012 6:23 pm

    Ellie i know what your’re going thru, been there got the shirt etc loads of +ve thoughts from Yorkshire come on Hope you can do it,

  7. Rich Terpstra(jimjudd) permalink
    March 21, 2012 7:41 pm

    Ellie, Thinking of you ,Mom and Hope

  8. Robin White permalink
    March 22, 2012 1:45 am

    Oh Ellie and Roy, you poor dears. We went through hospitalizations and LPs with our first two babies and they were dreadful. Praying for both of you and of course sweet baby Hope.

    XOXO
    Robin from TR

  9. Patty Pappas permalink
    March 22, 2012 3:47 pm

    Ellie, you are all in my thoughts and prayers. Poor little Hope – she’s get through this and won’t remember a thing when she’s a teenager! You are such a strong, strong person and Hope is so extremely lucky to have you as a mum (and Roy as a dad!). Please give Hope an extra special get well hug for me.
    And hugs to you and Roy,
    Patty

  10. Kathy Ivrey permalink
    March 23, 2012 2:52 am

    Sending you, and Hope and Roy so much light and strength and GOOD HEALTH wishes! I know what it’s like to have a wee small baby in the hospital. Sending you and extra hug, Ellie.
    Kathy (badscooter)

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